Improving Medicare reimbursement & Genetic Testing; Upcoming Conference of Interest
Letter from Director
Onwards!
Kathryn
Policy and Publications
Improving Medicare’s Coverage with Evidence Development Program
- Serving as an advisor on the revision of the Centers for Medicare & Medicaid Services' CED guidance (which is done only every 10 years) to develop requirements that will enhance and improve CED.
- Discussing in JAMA Health Forum how to improve CED with tracking, transparency, and assessment of value added
Survey of Genetic Counselors’ Experience with Hereditary Cancer Tests Finds Significant Disparities
- Most respondents (94%) ordered a hereditary cancer panel (HCP) for patients to assess cancer predisposition.
- Most respondents (84%) indicated clinical indications and patients' requests as the main factors in selecting HCPs.
- Only 42%, considered reimbursement and patient OOP cost as an important.
- Respondents perceived that testing is more often reimbursed by insurance than genetic counseling, and patients are more willing to pay for testing than for genetic counseling.
The authors concluded that policy efforts should address this imbalance in reimbursement and patient OOP share. Patient-centered communication should educate patients on the benefits of genetic counseling. The survey was published in the Journal of Genetic Counseling.
Geriatricians’ Perspectives on Utility of ApoE Testing for Alzheimer’s Disease
News
Hear President Barack Obama and TRANSPERS at the Illumina Genomics Forum 9/28-10/1
New Research Resource on Website: Results from TRANSPERS Grant on Cancer and Genomic Medicine
TRANSPERS recently completed their National Cancer Institute grant, Coverage, Price, and Reimbursement for Multigene Tests for Cancer and Related Conditions (R01CA221870). Publications summarizes and provides links to 30 papers from this work including publications in JAMA (N=2), Science, JNCCN, Health Affairs, Genetics in Medicine (N=5), and Value in Health (theme section of 6 papers).
Upcoming Conference
Join Kathryn at National Academy of Medicine Roundtable on Genomic Data Use to Advance Precision Medicine
The Roundtable on Genomics and Precision Health in collaboration with the National Cancer Policy Forum will host a public workshop on Wednesday, October 12, 2022 (10:30 AM – 6:00 PM EDT) that will examine how genomic data are used in health care, outside of the traditional settings for clinical genetics, and to identify opportunities for advancement of precision health care delivery. This workshop will also explore how patients, clinicians, and payers assess and act upon the risks and benefits of genomic screening and diagnostic testing. The overarching goal of the workshop is to examine strategies to ensure that genomic applications are responsibly and equitably adopted to benefit populations as well as individuals over time. Join TRANSPERS Director and member of the Roundtable Kathryn Phillips at this workshop! Zoom or in-person, no fee to register. REGISTER NOW!