Center for Translational and Policy Research on Precision Medicine
TRANSPERS Collaborators Led by Deborah Marshall (University of Calgary) Publish in Genetics In Medicine
Mon Jun 13, 2016
TRANSPERS collaborators recently published an article on Whole Genome Sequencing titled: "What are people willing to pay for whole-genome sequencing information, and who decides what they receive?" in this month's issue of Genetics in Medicine. This study, based on a US nationally representative survey, found that more people preferred to decide for themselves what information from whole genome sequencing would be returned to them (43%) instead of having their doctors or experts decide. In addition, although respondents valued actionable information more than non-actionable information, some respondents perceived that genetic information could negatively impact them.