TRANSPERS Collaborators Led by Deborah Marshall (University of Calgary) Publish in Genetics In Medicine
TRANSPERS collaborators recently published an article on Whole Genome Sequencing titled: "What are people willing to pay for whole-genome sequencing information, and who decides what they receive?" in this month's issue of Genetics in Medicine. This study, based on a US nationally representative survey, found that more people preferred to decide for themselves what information from whole genome sequencing would be returned to them (43%) instead of having their doctors or experts decide. In addition, although respondents valued actionable information more than non-actionable information, some respondents perceived that genetic information could negatively impact them.